As you get older, you need to take more responsibility for managing your treatment. That way, by the time you are living on your own, you will be able to take full control of your medical life. If you can answer yes to the questions for your age group, you’re doing really well!

Younger Teens

Older Teens

Transitioning to Adult Care

Here are some resources for you as you make the transition to adult care:

College

College students can also get accommodations. The Americans with Disabilities Act (ADA) prohibits colleges, universities, and trade schools from discriminating against students with a disability. You must request these accommodations, submit acceptable proof of having a disability, and meet with the proper people to determine which accommodations will apply to you. In college, these accommodations can also apply to dorm life, not just to the classroom. They might include modifications to testing, seating, absences, and a private dorm room or bathroom. Learn more about the Americans with Disabilities Act.

CCFA Campus Connection is an online resource for students with IBD on a college campus that provides resources for living and coping with IBD, as well as an opportunity to connect with others on campuses across the country. 

Work

If you are looking for a job, you should consider yourself just another job applicant. Don’t discuss your IBD in your interview. Your interview should focus on your qualifications and suitability for the job. After you land the job, are doing it well, and are through the probationary period, then discuss your need for any specific work accommodations. ADA requires that employers provide reasonable modifications, like the frequent use of a restroom or flexible time off for treatments and appointments. 

Smoking

Smoking carries many health risks, including lung cancer and heart disease. Also, smoking can make IBD symptoms worse. Smoking cigarettes can trigger flares. People with Crohn’s disease who smoke tend to have more recurrences of their disease, more frequent need for surgery, and a greater need for immune-system-suppressing medications. So don’t get started, or get help to stop. 

Alcohol

Alcohol affects each IBD patient differently. The use or abuse of alcohol or other drugs, either illicit or over-the-counter, can have damaging effects on your GI tract, including your liver, and may interfere with your medications. Discuss the use of alcohol with your doctor or health care provider.

General Health Care Maintenance

It is important to monitor your health now and into adulthood. While working with your health care provider for your IBD issues, also remember to speak with your pediatrician about other important issues, including:

Vaccinations: Kids and teens with IBD should generally follow the same vaccination schedules as the general pediatric population. People on immunomodulators and biologic therapy should generally avoid live virus vaccines. Be sure you or your parents ask your health care provider about flu shots, HPV, and other immunizations.

Oral health: Among symptoms of IBD outside the GI tract are ulcers in the mouth, also known as canker sores. These may be caused by the IBD itself, or they might be a secondary symptom due to nutritional deficiencies. Although not serious, these ulcers can be quite painful. Mouth rinses and other topical treatments may help relieve the discomfort. Please remember to also see your dentist for routine dental care.

For a listing of additional things to keep an eye on in the future, check out CCFA’s General Healthcare Maintenance Fact Sheet.

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